Charlie Gard's parents say hospital denied their 'final wish' for dying son

Jerome Frank
July 29, 2017

The Pope and Donald Trump were among those who tweeted their support - Charlie's fate became an worldwide issue with pro-life groups attaching themselves to the campaign.

On Friday night, the hospital offered its condolences to Charlie's family.

Charlie's case has become the catalyst for debates about health care funding, medical intervention, the role of the state and the rights of the child. He suffered from encephalomyopathic mitochondrial DNA depletion syndrome.

In an emotional Facebook post, Charlie's mother, Connie Yates requested people to help her find a pediatric intensive care consultant who can assist in taking care of her son during his time in the hospice.

"It is impossible for any of us to comprehend or even begin to imagine the agony to which Charlie's parents have been subjected in recent weeks and months as they have had to come to terms with the decision that they have now made", he said in a judgement.

Their farewell to their tiny and precious baby touches the hearts of all who, like Pope Francis, have followed this sad and complex story.

Chris Gard and Connie Yates announced in London's High Court July 24 that they had ended their legal struggle to take their baby overseas for treatment after a US neurologist, Dr. Michio Hirano, said he was no longer willing to offer Charlie experimental nucleoside therapy after he examined the results of a new MRI scan. Based on new evidence, the couple said Charlie's condition has deteriorated too much and there no longer is any hope of the experimental treatment working. "No, you can't have your child, and no, we're not letting anyone know when he'll be moved, and we have no intention of telling the press where we're going to finish this". He will not be allowed to go home, as his parents wished.

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Ms Yates and Mr Gard then battled for Charlie to take his last breath from the comfort of their home, but that "final wish" was denied by the court, with doctors arguing logistical issues were a concern.

Baby Charlie with mum Connie and dad Chris. They raised more than $1.5 million for his medical care.

Charlie's parents argued on behalf of their son and raised $1.8 million to bring him to the USA for experimental therapy. British and European courts upheld the hospital's position and barred the parents from taking their infant home.

10 July: Charlie's parents return to the High Court and ask Mr Justice Francis to carry out a fresh analysis of the case.

His parents have since been trying to find an intensive care doctor to oversee a plan that would allow Charlie to be ventilated in a hospice for several days so that they could bid farewell to their son, whose birthday falls on August 4.

Charlie's parents subsequently failed to overturn his ruling in the High Court, Court of Appeal and Supreme Court in London.

At a news conference July 25 in Rome, Mariella Enoc, president of the Vatican children's hospital, Bambino Gesu, said the hospital had partnered USA neurologist, Dr. Michio Hirano, to study Charlie's case. The hospital said its own doctors and independent medical experts agreed the treatment "would prolong Charlie's suffering".

Other reports by Guamnewswatch

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