Parents ask court to allow Baby Charlie to die at home

Ken Copeland
July 26, 2017

The hospital said the parents had rejected an offer of mediation.

The BBC reports Armstrong "told the presiding judge Mr Justice Francis that USA neurologist Dr Michio Hirano had said he was no longer willing to offer the baby experimental therapy after he saw the results of a new MRI scan last week". But so far attempts to find agreement have failed.

"I don't think it's fair to prolong their suffering any longer", he said.

One month after his birth last fall, baby Charlie was diagnosed with a very rare genetic disease.

On Monday, Charlie's parents, Chris Gard and Connie Yates, announced they are ending their lengthy court battle over treatment for their son. We are now going to spend our last precious moments with our son Charlie, who unfortunately won't make his first birthday in just under two weeks' time, and we will ask our privacy is respected at this very hard time.

"It now seems to hinge partly on how long parents want to keep Charlie alive at home".

U.S. President Donald Trump and Pope Francis are among many people not directly involved who have weighed in with views.

USA - based professional life activists traveled to London to help Charlie's folks, and the case turned into a flashpoint for contradicting sees on human services subsidizing, medicinal intercession, the part of the state and the privileges of the youngster.

Some commentators portrayed the case as a clash between family and the state, and USA conservatives used it to criticize Britain's government-funded health care system. The parents appealed a High Court decision, and their appeal to the U.K.'s Supreme Court was rejected.

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MORE: How group therapy can benefit parents of children with SMA. Hirano said there was as high as a 10 percent chance that the child's condition could be improved with treatment, a view not shared by Charlie's United Kingdom doctors who argued that travel to the USA would cause the child undue suffering.

Art Estopinan's six-year-old son has a similar medical condition and was helped by the expert who offered to treat Charlie.

It comes after emotional scenes at the High Court yesterday in which they acknowledged that his muscles had deteriorated so much that "time had run out" for treatment.

Great Ormond Street disagreed. Charlie's condition left him blind, deaf and requiring ventilator assistance to breathe.

The hospital added it was concerned to hear the professor state in the witness box at the High Court hearing on 13 July that he had a financial interest in some of the treatment he proposed prescribing for Charlie.

"We have always paid tribute to the extraordinary courage and strength of Connie Yates and Chris Gard and their devotion to their son", a spokesperson for GOSH said.

Doctors say that the treatment won't help and could cause the child pain.

The hospital defended its decision not to allow experimental nucleoside treatment (NBT) for the child because "from the moment of his diagnosis, Charlie's prognosis was known to be bleak".

Other reports by Guamnewswatch

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