Charlie Gard doctor says new data has emerged since judge's ruling

Jerome Frank
July 14, 2017

"We said he's not suffering and not in pain", Yates yelled. Two hours into the High Court hearing, questions the judge prompted tensions to boil over.

Mr Gard stood up and said: 'I thought this was supposed to be independent'. His parents, Chris Gard and Connie Yates, refuse to give up on their son and continue to fight for further treatment.

His parents did not agree with the decision and took his case to judges in not only the High Court but also the Court of Appeals and the Supreme Court in London.

The head size of terminally-ill baby Charlie Gard should be measured by an independent third party to check if there has been any brain development, a judge has ordered. They [his parents] have been told they can't even take him home to die and they cannot fly him to America...

The judge at London's High Court said the case will be held in full on Thursday.

The Gard family has also battled in several courts to get their son released but the courts ruled against them.

The couple say there is new evidence and want Mr Justice Francis, who in April ruled in favour of Great Ormond Street and said Charlie should be allowed to die with dignity, to carry out a fresh analysis of their case.

Charlie's story captured hearts all over the world when his hospital declared it would be in the infant's best interest to be removed from life support.

The judge is not expected to make a final ruling today.

Mr Justice Francis had made a ruling on April 11 after a trial in the Family Division of the High Court in London.

And after Mr Armstrong suggested the case is a matter of public debate across Britain, the judge added: "Comments by people who know nothing about the case are probably not very helpful".

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The judge said it may be a good idea if the doctor travelled to London to see Charlie and meet Great Ormond Street specialists.

The hospital said it had treated more than 1,000 patients with mitochondrial disease and offered nucleoside treatment where appropriate.

Ahead of the hearing this morning, an emotional Mr Seton-Marsden read a statement from the family.

A U.S. doctor offering to treat Charlie Gard has said he is willing to come to London at short notice to examine the sick baby.

"We love him more than life itself", expressed the parents in a statement.

Because, contrary to the opinion of his doctors, the parents of Charlie Gard want their son to keep fighting.

Mr Gordon suggested that Charlie might be being unlawfully detained and denied his right to liberty.

It has been said for years that a parent's biggest fear is losing a child. According to the hospital, it's not about money (which Charlie's parents have raised), but rather about doing "what is right for Charlie".

They said there was no risk the proposed therapy in the U.S. would cause Charlie "significant harm".

Charlie has a rare genetic disorder that attacks his muscles and internal organs, and is on a ventilator at the Great Ormond Street Hospital in London.

The Gards then requested that they at least be allowed to take Charlie home to die, but hospital officials refused last week, sparking an worldwide outcry that brought offers of help from Pope Francis and President Trump.

Other reports by Guamnewswatch

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